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Below are the 20 most recent journal entries recorded in Feminists are not afraid of ovaries!'s LiveJournal:

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Friday, August 31st, 2007
2:47 am
Complex ovarian cyst with Mirena IUD... need advice
So I've had a Mirena IUD for about a year and a half now after horrible mood problems on conventional birth control pills. I've loved it... no-mistakes, no-hassle birth control, who wouldn't? But alas, it was too good to last....
(More info behind the cut 'cause super-detailed)Collapse )
Any recommendations on how to deal with the situation until what is probably now inevitable surgery would be greatly appreciated!
Wednesday, June 13th, 2007
12:59 am
Beginning Clomid
Today I saw my wonderful gynecologist for my first official fertility appointment. She ordered plenty of blood work, prescribed Clomid for me, provided me with some prenatal vitamins, and recommended I increase my daily metformin from 1000mg to 1500mg. She suggested I stop taking my herbal tea and vitex supplement, which I had already begun to phase out, but said I should feel free to continue taking the evening primrose oil. I suppose the universe was working with me today, because I just happen to be on the third day of my period and my doctor prefers to have her patients begin Clomid on cycle day 3, so I took my first pill this afternoon.

She also gave me some information and a sample cup for my husband, so he can provide a particular lab with a semen sample. I'm sure he won't be overjoyed at having to do this, but it's important for us to know if there is a male factor involved, too. Hopefully that won't be the case.

I clumsily broke the Clomid tablet I took earlier while I was trying to remove it from the packaging, so I hope that doesn't effect anything. I still took most of the medication, so I don't think it will, but the thought that it might has still been nagging at me.

My doctor agreed - from what I told her about my BBT charts - that I don't seem to be ovulating, which would explain why I haven't conceived naturally any time in the last year and a half, but she seemed confident that Clomid will help. She did make it clear that it may not be the answer for me and that I cannot remain on Clomid indefinitely, so I'm not going in to this thinking I will become pregnant in the next few months. I hope I will, but I know better than to think things will necessarily work out that way. :)

Wish us luck!

x-posted to LJ community Fertilityissues
Friday, April 27th, 2007
5:31 pm
Questions About Conception & Pregnancy with PCOS
Hi, I haven't seen much activity in this community in a while, so I hope I can get a few responses!

As you may already know, I have a pretty severe case of PCOS; my ovaries are very enlarged and often covered with multiple cysts, I menstruate very infrequently when I'm not taking The Pill (I've gone for more than six months without menstruating), and I am insulin resistant. In the past I have managed my PCOS with various drugs, including The Pill, metformin, spironolactone (to inhibit unwanted hair growth), and Usept tablets for the interstitial cystitis I developed possibly due to my PCOS.

Since my husband and I decided to try to conceive, I've had to stop taking all my medications because all of them pose a possible risk to the fetus (the effects of metformin and Usept on pregnancies hasn't been widely studied, so my doctors recommended against using them while trying to conceive). Because I've been off all of my medications, I haven't been menstruating regularly and I haven't really expected to get pregnant without any fertility treatments. So, my question is, have any of you ladies been surprised to get pregnant even though you didn't seem to be ovulating? My last menstrual cycle was at least four months ago.

I'm especially curious because I've been having PMS-like symptoms for about a week now, but I have had yet to menstruate. In addition to that, I've been constipated and fatigued, which are all symptoms of early pregnancy, but I am extremely doubtful that I'm pregnant because of my PCOS; with my ovaries, I cannot believe it could "just happen" like it happens for women with normal ovaries and cycles. I took two pregnancy tests, the first came up with no result (the symbol in the "control" window never appeared) and the second turned up negative, which is what I expected, but two days later I'm in the same situation and have yet to start bleeding! I'm going to retest in a few days and if things still have not changed and I get another negative result, then I'm going ask for an earlier appointment with my gynecologist, who I'm supposed to see on June 12 for a regular checkup and to talk about fertility options.

I don't think I'm pregnant and I'm not menstruating, so do any of you ladies have any idea what else might be going on? Have any of you experienced anything like this before? I'm not scared, but I am a little weirded-out because my body has never behaved like this before.

Sorry for the long post! I just wanted to be as clear as possible about what's going on, because I have no idea what to make of it at this point.

Current Mood: confused
Tuesday, January 30th, 2007
12:25 pm
Sick of It!
I've finally gotten fed up with all the various medications I've been taking for my PCOS for so long and have decided to look to herbal remedies for relief. My blood sugar has been under control for the last year without the help of metformin, so I feel secure about not taking that anymore, and the spironolactone never gave me any relief from my excess facial and body hair, so I really just don't see any reason to continue taking it; as for The Pill, it causes frequent yeast infections and my husband and I are interested in trying to conceive, so stopping it is a no-brainer. I will continue to take the usept tablets prescribed to me by my urologist, because they really do help relieve my bladder pain and thanks to them I don't have to constantly urinate. 

I've done a lot of research both on my own and with the guidance of my endocrinologist and OB/Gyn about natural remedies and I feel pretty confident about my new regimen. I may still need to eventually take clomid to conceive, but I'm not in a big rush to get pregnant, so I feel I have the time to try something gentler and less expensive.

Of course, I'm going to continue with my eating habits  (small portions more often, avoiding simple carbs) and taking my vitamins, but I'm also going to introduce evening primrose oil, a Vitex supplement, and an herbal tea blend that should aid both with ovulation as well as help ease my mild rheumatoid arthritis (which I've had since I was a young child - I'm 24 now). I'll be taking the evening primrose oil in doses of three capsules, three times a day from new moon to full moon; I will take the Vitex supplement in doses of one capsule three times a day for twelve weeks, then just one capsule once a week from then on; the tea I'm making is mainly a blend of red clover blossoms, black cohosh, and nettle leaves of which I will drink one cup twice a day, in the morning and in the evening.  

I will also begin charting my morning body temperature to find out if and when I'm ovulating (I'm the type of PCOS patient who has literally gone for a year without a period before and I've never had a regular period without being on The Pill), and if I should become pregnant on this regimen I will stop taking the supplements immediately, because it is recommended to avoid taking evening primrose oil and Vitex during pregnancy.

Have any of you ladies tried a similar approach to managing your PCOS before? Have you tried a combination of  prescription drugs and natrural remedies? I'm curious to know what anyone else is doing which has worked for them and how you feel about your current drug/herbal regimen. I hope to get some feedback soon! 

Thanks for reading and thanks for your time :)

Current Mood: curious
Thursday, September 28th, 2006
10:11 am
For anyone on Metformin (either ER or regular, tho I'm hoping to do ER because I've heard its less disruptive with the GI stuff), how much weight have you lost? How quickly? What changes did you make to your diet and exercise, if any?

Also, I have fabulous IBS. I've heard y'all saying it really upset your stomachs. Is it really worth it?
Wednesday, September 27th, 2006
10:35 am
I'm seeing an endocrinologist for PCOS tomorrow. This is my first time, so exciting. What can I expect?

Here are some possibly relevant details. I was diagnosed at 21, I am now 25. I have tiny cysts all over both ovaries, some facial hair, fairly regular periods, some IR issues, very high bp and cholesterol for my bmi and age. I am mildly overweight mostly because of chronic pain not allowing me to move around a lot - I am on meds for that now and the pain is managed, so I am beginning to be able to be more active. I do not ever want to have children, so I'm not going for the fertility talk. I mostly would like to put off the onset of diabetes and lose some weight, etc, and start metformin. Any information would be great, thanks.
Friday, September 1st, 2006
3:18 pm

Hi everyone, i've just been diagnosed with PCOS - it was quite a shock but once I've read up all about it, it all makes sense.

I'm overweight (you could put me on an island with nothing ot eat but sand and I would STILL not lose any weight)

I have extra body hair on the back of my legs 

Irregular periods.

Unable to fall pregnant after one year of trying

It all really makes sense.

SO the doctor has prescribed me onto Diane ED - contraceptive pill.  After three months i"ll have a check up and see if the cysts have shrunk.  But I've been reading up about what causes cysts, or what can help....and apparently people with PCOS generally have TOO much insulin and/or glucose in their system.  And a diet that lowers these types of foods is recommended as it can assist.

Has anyone had any luck with loosing weight after treatment of PCOS?
And is PCOS something you have for the rest of your life? Does it ever go away?
What is your treatement?
How long did it take?

Sorry for all the questions but I could do with as much info as possible. Oh, I'm 26 by the way if that helps ;)


Thursday, August 31st, 2006
11:57 am
new member
Hi all :)
Just wondering how many of you are out there? This looks like it could be a great community but there haven't been any posts in a while...just checking :)
I'm 36 and have PCOS so would like to compare notes with you all out there!
Take care

Current Mood: curious
Tuesday, July 25th, 2006
9:53 pm
Hi, I am 24 and have just been diagnosed with PCOS following a pelvic ultrasound. I have been spared from being overweight but have been hairy and had acne for almost as long as I can remember. I haven't been on the pill for about 18 months and don't really want to go back on it unless I have to. I had a miscarriage about a year ago but am not ttc again just yet. I've learnt to cope with my symptoms but am not sure if there are any other downsides to just carrying on without medication. Anyway, I am seeing a gynecologist tomorrow for the first time and just wondered if you ladies had any advice or any suggestions for questions I should ask her?
I have started eating low GI and am finding it quite ok btw.
Thursday, July 20th, 2006
3:52 am
New member as expected here. I've been diagnosed with PCOS and was trying birth control for it unfortunately it made my anxiety flare up so I'm not on anything for it.

My oddity is that i don't seem to have my period regularly or at all sometimes. I suspect this is due to having gotten the shot a few times a while back. I tend to have my periods a few times a year as opposed to every month. I've been checked over about this and the doctors see no problems with continuing this way.

My main questions are:

1. Do i need to be taking something to help with the syndrome? to the best of my knowledge no cysts have been forming or at least they haven't been causing trouble and i\I was under the impression if you're getting cysts you'll know it.

2. If I do need to be taking something what are my options? All i've heard for options is birth control and glucophage tablets. i've already ruled out birth control but what exactly are glucophage tablets?

Thanks to all for any help you can give me.
Wednesday, May 24th, 2006
12:26 am
Hi, um, I just joined, and I'm 16 years old. About two months ago, I had this really, sharp pain in my left ovarie that kept me doubled over in pain and utterly useless for three hours, meaning that I have no idea what happened in those classes except that every movement hurt and I had a running tally of how many people asked me if I was OK. As I had never felt that kind of ovulation pain before, the nurse suggested that maybe I had an ovarian cyst, and that if I did, the pain would not return for two more months, which is the cycle that is pending soon. Is it possible that I have an ovarian cyst? Do girls as young as I get them? I think I'm PMSing today, so is it possible that the offending part of my cycle has passed, and that nothing happened to good ole Lefty after all?

Peace, Love, and Chocolate Monkeys,
Saturday, December 17th, 2005
1:32 am
metformin + bc = ??
i've been put on metformin, but lately i'm spotting. a lot. and it's making me crazy.

has anyone ever used metformin *and* bc? and if so, would you recommend it?

Current Mood: frustrated
Wednesday, November 16th, 2005
5:16 pm
Hey, I'm looking for a new endocrinologist/reproductive endocrinologist.  If you've got somebody that you would highly recommend who is in Los Angeles County, let me know.

Thanks in advance!

(cross posted)
Thursday, November 3rd, 2005
10:07 am
PCOS in Oz
cross post alert.. :)

Hey all..

I haven't been around much of late but I'm back and badder than ever ;) Ok that isn't quite true, but I like to sound tough at least! I run the state arm of a national PCOS Support Group in Australia and this group of amazing PCOS women have managed to put together a conference with Australia's leading experts.. It is this Saturday and all are welcome.

If you'd like more information go to www.posaa.asn.au or contact me on sa@posaa.asn.au

Once I have some notes put together I'll paste them somewhere accessible so all of you fabulous overseas folk can check them out too. We just have to spread the information as far and wide as we can, don't you think?

I trust you're all well.. it's been a massive year for PCOS in our country.. the support group has managed to get its way into magazines, radio and I even talked crap about my struggles on national television which you can watch at the below site by clicking the link and then 'hi' or 'lo' fi.


If you ever want to chat, I'm here!

Thursday, October 27th, 2005
9:58 am
I'm a fellow person with PCOS, and a college student. I'm currently working on a paper on PCOS, and am interested in interviewing fellow people with PCOS.
If you're interested in being interviewed via e-mail, please contact me at heathertappen@REMOVETHISgmail.com
Monday, October 10th, 2005
5:29 pm
Would anyone have a listing of states that have made it a law for insurance companies to cover infertility services?
I know that Connecticut was just added, so there are now 15 - but I was not sure what some of the other states are and what they force insurance companies to cover.
x-posted to a few other communities
Wednesday, September 28th, 2005
12:10 pm
Hi, I was diagnosed with PCOS 8 years ago after having 2 cysts the size of grapefruits removed surgically. Since then I have fluctuated between no treatment and horrible side effects vs. being put on high-dose BC and having fewer symptoms accompanied by weight loss (yay!). The problem is that the pill I have to take was recently cloned by the generic companies, so the docs no longer get free samples of the name brand and my doc won't let me take generic because there is too much risk of variance in the hormone levels.

I'm curious, for those of you who have found BC to be effective/helpful which pills do you use?

( FYI I'm on Nordette which is like $40-50/month without insurance and 20ish if I buy it the illegal way via canadian online pharmacies.)
Friday, August 26th, 2005
8:31 pm

I am new to this site and honestly it is nice to see so many people who i can talk to about what having PCOS is like. This is a really personal question, and i know that you all are not doctors or nurses and can't tell me from a medical point of view, but maybe you have a personal story. I went into the gyno today and discussed with her some bumps on my anus area (sorry if thats not medically correct) that to me were skin tags. i have skin tags EVERYwhere on my body, armpits, neck, back, stomach, etc... so i thought they were just skin tags that were getting irrated due to being around fecal matter. she thought they were genital warts, but questioned it after we discussed my sexual history (it could still be possible but she was still wondering) and sent some of them to get tested. I know that i will get the results in a few days, but i am going crazy. has this ever happened to you or anyone you know? i have read some websites that say that skin tags do appear on the anus, but i guess i am just wondering if anyone has a personal expierence with it. thank you to anyone who answers.
Wednesday, July 20th, 2005
1:26 am
advice needed - preparing for gyno appointment
my gp diagnosed me with pcos about 6 weeks ago, and i am now preparing to see the gyno on the 26th, and i am wondering what i may need to take/know for this appointment.

any suggestions?

Current Mood: nervous
Sunday, July 10th, 2005
7:03 am
new one
Hi I'm Stacie. I feel like I'm in denial. I feel like my symptoms aren't as pronounced as others and that maybe my doctor was wrong about me having PCOS. I have a little hair over my lip (but I take care of it) and a little bit on my chest (but it's soft and unnoticeable). My leg hair grows out of control (but I just have dark features). I've only ever had one cyst on my ovary. My periods are sporadic. I have a lot of excess weight. I just feel like she could be wrong.. and I'm on medication for no reason. I was taking Metformin 500, but I only lost 0.5 lbs in 3 months. So my doctor upped it to 850 yesterday and I will see her again in another 3 months.

Feels strange.
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